More needs to be done to support people with diabetes, as three in five currently struggle with emotional or mental health issues, a charity has warned.
A large-scale study by Diabetes UK asked 8,500 people of different ages, ethnicities and backgrounds from across the UK to share their experiences of living with diabetes today.
Participants said that diabetes affects their emotional wellbeing, with three in five (64%) saying that they often or sometimes feel down because of their diabetes
The study also uncovered that one in three (33%) patients said that diabetes got in the way of them or a family member doing things they wanted to do.
Lis Warren, who was diagnosed with type 1 diabetes in 1965 when she was 13 years old, has first-hand experience of struggling with symptoms and side effects.
“When I was diagnosed, diabetes was seen as a medical condition but there was little understanding of the effect it has on mental health, so psychological support was unavailable. I only went to hospital once a year to review my blood glucose control,” she said.
“I started struggling with food when I was a teenager. When I look back now, I had an eating disorder. After many years of a disordered relationship with food, I even had seizures from low blood sugar when I routinely ate insufficient carbohydrate to lose weight.”
Lis now spends her time campaigning about diabetes and volunteering. She gives and gets support talking to others who live with diabetes and struggle with their food.
“I didn’t speak to anyone about how diabetes had affected me psychologically for forty years. I could easily have died from regularly bingeing and dieting and I feel very lucky to be alive, and remain well, because I finally got support.”
Diabetes affects more than 4.5 million people in the UK, and according to Chris Askew, chief executive of Diabetes UK, it is the “fastest-growing health crisis of our time”.
“It can lead to heart disease, stroke, kidney failure and lower limb amputations,” he said.
“This new research brings to light the isolation that can come from managing an invisible condition, and how detrimental living with diabetes can be to a person’s emotional wellbeing without the right support.”
He added that effective diabetes care requires that a person’s emotional needs are taken into account, alongside their physical care needs.
“We want to see a system where specialist support – from people who understand diabetes – is made available to those who need it,” he said.
“But in order to achieve that, we need to see sustained funding of £44 million for the diabetes transformation programme, which sets out to improve the treatment and care for people with diabetes.
“Investing now will not only allow us to reap substantial financial and social benefits in the future, but more importantly it will help people to live well with diabetes today.”
This piece was first seen on ‘HuffPost’ 14 November 2017.